Kick off

So, I had originally planned to write a very chatty but witty post about my digital footprint by way of introducing my writing and myself to this new platform. Then I went down a rabbithole, reading Facebook while watching Rap Game (uk) and thinking about how I have spent other Friday evenings. Today I am sitting at home, having forgone a ticket to see Abba Voyage due to the remnants of Covid infection, not feeling sorry for myself really but feeling a little belligerent towards this illness ridden existence I seem to lead these days.

My childhood was healthy and I was fine til I hit my midyears really. Then I was dx with Parkinson’s when I was 38. I went on to be happily told about multiple meningioma (let’s not be coy here, I have 8 tumours in my head) and the latest episode has had me being fitted with a shunt IN MY BRAIN to counteract hydrocephalus excess brain pressure. WTAF?!?! I also had two children and got divorced and was made redundant. I believe in keeping busy.

Until recently I have been quite calm about this all (well ok, not the divorce) but tbh the last round that ended in proper brain surgery has hit home. And now, I’m starting to wonder if there’s anything else heading on down the line towards me. I really hope not.

I try not to think too much about it. If I did I’d freak out about mortality I think. Instead I’m choosing to believe the doctors who tell me that’s everything is groovy. Quite how they can say with a straight face I don’t know but hey, maybe that’s why it takes a long time to be a doctor. Maybe they have to practice not laughing wildly when they hand out their diagnosis.

So why post about all of this?. Perhaps you will get a flavour of how I cope with my ahem, disabilities. Perhaps I will show you that brain disease can and does happens to people like you and me. Perhaps this familiarity will make you think twice when you look away from that person who is staggering along the street looking drunk at 10am. Who knows. But I would be thrillled if you came along for the ride. What the heck?!

At this point I am supposed to ask you to consider paying for access to my paragraphs. I think that I will give you a few posts first. Then you can decide if I’m worth it. Any sponsorship deals will be considered, of course. So that’s me. Well, a bit of me. To find out more come back another day!